A basic human right by Emily Doyan

Emily Doyan suffers from multiple rare diseases.

​I was always a sickly child, but I didn’t get really sick until I was 19.

At the time I was going to college. Studying pre-Med and following my dreams like every  young person. I already had a few expensive chronic conditions diagnosed at the time, and liked that President Obama was going to make insurance accept people with pre-existing conditions. B

ecause of course I had expected to one day have a job and leave my father’s insurance. But at 19 everything went downhill… I got sicker and sicker, and after years I finally had to leave school and put my dreams aside. I needed to find a way to get well. Luckily, the ACA passed and I knew I felt better knowing I had until I was 26 to get better and figure this out.

Even if I didn’t figure it out, I would be able to get insurance coverage.

By the time 26 rolled around I had 5 more chronic conditions diagnosed and was applying for disability.

I never asked to be sick, or wanted it.

I’m not saying it is the worst thing that could happen to someone but it is certainly a hardship. It is difficult emotionally, physically, and not to point too fine a point on it: financially. Being chronically ill is expensive. Pills, procedures, mobility aids, ER visits all add up, and without insurance I would die. With it, my life is still tough financially, but I do get to live. Without the ACA I have no rights and I would do. As would countless others. If they choose to keep the ACA but make changes that will actually improve it, then I think that’s wonderful. To repeal it altogether is negligence to the highest degree. Every human being has worth and contributes something to this world. That includes disabled people. I don’t think that all disabled people dying or having to stay home because they cannot afford necessary mobility aides would add anything to this country. I think it would take away. And to paraphrase Canadian natalie-ann, giving money to government so that other people who are less fortunate can have a good quality of life is called being a decent human being.

 

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